Rett Syndrome Fund

VISIT CHEO RETT SYNDROM PAGE

Welcome to the 16th Annual Rett Syndrome golf tournament. Last years tournament was another success, raising over $10,000. We would like to thank all the people who participated last year. The generosity and support from all the businesses, volunteers and golfers was overwhelming and greatly appreciated. All of our silent angels will benefit in numerous ways with the money raised.

Tournament Details

EVENTS

Saturday August 24th, 2019

Shot Gun Start and Best Ball

10:00a.m. Flight of Golfers will be added when 1:30 flight is full.

1:30p.m. Flight of Golfer Tee Off
Dinner to Follow

COST

9 Holes of Golf and Dinner
$70.00 ~Dinner only $50.00
($20.00 from every entry fee will be
donated to our charity)

PRIZES

Hole in one prizes and other
various prizes donated by local businesses.

Now entering our sixteenth year hosting this tournament we have, with your help, raised over $263,000. We have been able to help the Eastern Ontario Rett Syndrome Chapter, we have established a fund at CHEO and we were able to help continue advanced research in Rett reversal at Sick Kids in Toronto.

This year we would like to help continue to grow the fund set up at CHEO. Dr. Humphreys and Dr. Carter are dedicated neurologists to all our Rett Syndrome girls. The most recent accomplishment is the opening of the 1st Rett Syndrome Clinic in Canada. This clinic is important to the complex care our daughters need. The Jessica Carr fund at CHEO has been able to help provide support for the clinical intervention required for Rett Syndrome patients and to help fund various research projects.

Jessica is now 17 1/2. She is faced with many medical complications and can’t do many of things we can do, but the love, patience and happiness that comes from Jessica captures you and your heart swells when you are with her. She is an inspiration to all who know her and is a joy to be around.

Please help make us make a difference in Jessica’s life and the lives of other Rett girls. Together we can make the 2019 Rett Syndrome Golf Tournament another huge success. Thank you for your time.

PRINT A REGISTRATION FORM

Rett Syndrome Poster

Golf Tournament Brochure

rick@cedarvalleygolf.ca

WEBSITE

www.cedarvalleygolf.ca

PHONE

+1 (613) 342-2158

ADDRESS

7041 County Road 29 (Stewart Blvd.) Brockville, ON K6V 5T4

"*" indicates required fields

THE JESSICA CARR RETT SYNDROME FUND

A family’s story. A community’s lasting impact.

For sixteen years, golfers, volunteers, sponsors, and friends came together at Cedar Valley to support Jessica Carr and other girls living with Rett syndrome. The tournament has ended, but its purpose continues through the fund established in Jessica’s name at CHEO.

Support the Fund Read Our Story

Jessica Carr and the original Rett Syndrome Golf Tournament artwork

JESSICA’S STORY

Why this work began.

Jessica is Rick Carr’s daughter. She lives with Rett syndrome, a rare neurological disorder that affects communication, movement, and many aspects of daily life. Jessica has faced significant medical challenges, yet her warmth and spirit have always brought people together.

The Carr family created the Rett Syndrome Golf Tournament so their community could learn about Rett syndrome, support specialized care, and help advance research. What began as one family’s effort became a sixteen-year tradition at Cedar Valley.

A COMMUNITY LEGACY

Sixteen years of showing up.

The annual tournament is now part of Cedar Valley’s history. Its impact lives on through the organizations, clinicians, researchers, and families it helped support.

16annual Rett Syndrome golf tournaments hosted at Cedar Valley

$263,000+raised with the help of golfers, sponsors, businesses, and volunteers

One lasting fundestablished at CHEO in Jessica Carr’s name

WHERE THE SUPPORT WENT

Care, community, and research.

The tournament’s proceeds supported the Eastern Ontario Rett Syndrome community, helped grow the Jessica Carr Fund at CHEO, and contributed to advanced Rett syndrome research.

Specialized care at CHEOSupporting clinical care and the complex needs of girls and women living with Rett syndrome.

Rett syndrome researchThe Jessica Carr Fund has been acknowledged in research examining the neurological and gastrointestinal effects of Rett syndrome.

Families and communityRaising awareness and helping families feel less alone in navigating a rare and complex disorder.

CONTINUE THE LEGACY

Donate through CHEO Foundation.

Gifts can continue to support the fund established in Jessica’s name. CHEO Foundation accepts donations online, by phone, and by mail.

Donate at CHEO Foundation Call 613-737-2780

When donating, please ask that your gift be directed to the Jessica Carr Fund for Rett Syndrome research. If the online form does not provide a designation field, contact CHEO Foundation before completing your gift.

Choose your giftMake a one-time or monthly donation through CHEO Foundation.

Name the fundSpecify the Jessica Carr Fund for Rett Syndrome research.

Confirm with CHEOFor assistance, call CHEO Foundation at 613-737-2780.

FROM THE ARCHIVE

Remembering the tournament.

The original Jessica artwork, winged golf-ball identity, poster, and brochure remain part of the story. Keeping them here honours the volunteers, sponsors, golfers, and families who built the tournament over sixteen years.

These materials are preserved as historical documents. Registration information and event dates in them are no longer active.

Learn About Rett Care at CHEO